HOUSE OF REPRESENTATIVES

152nd GENERAL ASSEMBLY

HOUSE AMENDMENT NO. 1

TO

HOUSE SUBSTITUTE NO. 1

FOR

HOUSE BILL NO. 286

AMEND House Substitute No. 1 for House Bill No. 286 by deleting line 36 in its entirety and inserting in lieu thereof the following:

“ not do any of the following based solely on any genetic characteristic or genetic information contained in the result of any genetic test. ”.

FURTHER AMEND House Substitute No. 1 for House Bill No. 286 by deleting lines 43 through 45 in their entirety and inserting in lieu thereof the following:

“ any genetic test that is in an individual’s medical record or pertinent family history. ”.

FURTHER AMEND House Substitute No. 1 for House Bill No. 286 by deleting lines 55 through 56 in their entirety and inserting in lieu thereof the following:

“ (e) A person engaged in the business of life insurance cannot attempt to obtain or obtain information from an entity providing direct-to-consumer genetic testing without the written informed consent of the individual as required under § 1202 of Title 16. ”.

SYNOPSIS

This Amendment aligns the restrictions and exceptions in this Act so they apply to genetic information from direct-to-consumer genetic testing but not to genetic information that is in an individual's medical record or pertinent family history. This Amendment also revises the requirement for written informed consent for information from direct-to-consumer genetic testing so it applies to persons engaged in the business of life insurance so that the Department of Insurance can enforce this requirement.