SPONSOR: |
Sen. Henry & Sen. Townsend & Sen. Cloutier
& Rep. Jaques |
|
Sens.
Blevins, Ennis; Reps. Bolden, Hensley, Mitchell, Paradee, B. Short, M. Smith,
Wilson, K. Williams, Baumbach |
DELAWARE STATE SENATE 148th GENERAL ASSEMBLY |
SENATE BILL NO. 93 |
AN ACT TO AMEND TITLE 16 OF THE DELAWARE CODE RELATED TO CREATING AN INTERAGENCY COMMITTEE ON AUTISM AND THE DELAWARE NETWORK FOR EXCELLENCE IN AUTISM. |
Section 1. Amend Chapter 55, Title 16 of the Delaware Code by making deletions as shown by strike through and insertions as shown by underline as follows:
Subchapter IV. Interagency Committee on Autism and the
Delaware Network for Excellence in Autism
§ 5541 Definitions.
For the
purposes of this subchapter:
(1) “Autism Spectrum
Disorders” (ASD) shall have the same definition as in the current edition of
the “Diagnostic and Statistical Manual of Mental Disorders” published by the
American Psychiatric Association.
“Autism Spectrum Disorders” (ASD) shall also include related
developmental disabilities whenever people with these disabilities can also
benefit from the improvements and enhancements identified for people with
ASD.
(2) “People
living with ASD” shall include the person with ASD and their legal guardian(s)
(3) “Agencies”
shall include both public and private agencies and associations.
§ 5542. Interagency Committee on Autism
The General
Assembly hereby establishes the Interagency Committee on Autism (ICA) with the
charge to:
a)
Utilize evidence-based practices and programs to
improve outcomes for people living with ASD and related developmental
disabilities in Delaware by sharing information, initiatives, data and
communications among both public and private agencies providing services and
supports for individuals and families affected by
Autism
Spectrum Disorders in the State of Delaware.
b)
Implement the recommendations outlined in the 2013
Delaware Strategic Plan entitled “Blueprint for Collective Action: Final Report
of the Delaware Strategic Plan to Improve Services and Supports for Individuals
with Autism Spectrum Disorder.” This may include assisting state agencies and
partner agencies to develop more detailed implementation strategies and
timelines, and to track progress towards specific goals.
c)
Monitor services currently provided by state
agencies to people with ASD, with the goal of identifying gaps and avoiding
duplication of services
d)
Provide oversight for and development of goals and
priorities for the Delaware Network for Excellence in Autism (Network), created
to assist in the implementation of the Committee’s recommendations.
e)
Advise the General Assembly on legislation that is
needed to implement these recommendations. The ICA may develop and recommend
legislation to the General Assembly or comment on pending legislation that
affects those persons.
f)
Submit a report annually to the Governor and the General Assembly summarizing:
1)
The progress towards all recommendations adopted by
the ICA and the activities of the Network and the ICA;
2)
Major categories of expenses and that includes all
public, private, and in-kind support.
g)
Members of the ICA shall not be compensated directly
for their service on the ICA
h) The ICA shall be chaired by the Network
Director, who shall be responsible for coordinating quarterly meetings of the
ICA with the locations of those meetings moving between state counties
regularly.
i) The Network Director shall not be a voting
member of the ICA.
j) Members of the ICA in existence at the time
of this legislation’s passage shall maintain their membership.
k) New members of the ICA not specifically
mentioned below shall be appointed by a majority vote of the existing ICA
members.
l) The ICA shall adopt rules for the conduct of
its meetings.
m) Any actions taken by the ICA must be approved
by a majority vote of the members present.
n) The ICA shall establish policies and adopt rules to carry out its duties.
o) Voting members of the ICA shall consist of,
but not be limited to:
1)
The Statewide Director of the Delaware Autism Program;
2) A representative appointed by the Department
of Education;
3) A representative appointed by the Division of
Developmental Disabilities Services;
4) A representative appointed by the Division of
Vocational Rehabilitation;
5) A representative appointed by the Center for
Disabilities Studies at the University of Delaware;
6) A representative appointed by Autism Delaware;
7) A representative appointed by the Nemours
network;
8) A representative appointed by the Division of
Public Health;
9) A representative appointed by the Delaware
Association of Rehabilitation Facilities;
10) A representative appointed by the Division of
Substance Abuse and Mental Health;
11) A representative appointed by Family Voices;
12) A representative appointed by the Parent
Information Center of Delaware;
13) A representative of Part C/Birth to Three
System;
14) A representative appointed by the Division of
Prevention and Behavioral Health Services;
15) A parent or caregiver of a child or adult
with ASD from each county in Delaware;
16) An individual with ASD.
p) Administrative staff support for the ICA shall
be provided by the Network.
§ 5543. Delaware Network for Excellence in Autism
(a) The General Assembly hereby establishes the
Delaware Network for Excellence in Autism (Network) in order to provide a
resource for training and technical assistance for Delaware state agencies,
organizations and other private entities operating in the State of Delaware who
provide services and support to individuals and families affected by ASD.
(b) The Network
shall be run by a Director, who shall be hired by the Center for Disabilities
Studies, with representation on the hiring committee by the Interagency
Committee for Autism.
(c) The Network
Director shall be housed at the Center for Disabilities Studies at the University
of Delaware, which shall be responsible for supervision of the Director.
(d) The
Director of the Network shall be responsible for the creation of an annual
report and submission of such to the Governor and the General Assembly.
(e) Network
staff members shall possess experience in Autism Spectrum Disorders and shall
administer training and technical assistance in all cases utilizing accepted
evidence-based practices.
(f) The Network
shall maintain at least one administrative support staff position, who shall be
responsible for supporting the day-to-day operations of the Network and shall
be overseen by the Network Director.
(g) The Network
shall consist of at least four Team Leader Network staff positions, to ensure
adequate training across the areas of healthcare, education, vocational
services and social services.
(h) Team
Leaders shall be overseen by the Network Director.
(i) The Network
shall include at least 2 FTEs Family Trainer/Navigators, who shall be
responsible for assisting families in learning about and gaining access to
needed services, including those from the state system. These services shall
also include community training opportunities for individuals and families.
(j) Family
Navigators shall be contracted through Autism Delaware and shall provide a
quarterly report on the number of families served and major issues encountered
to the Network Director and the Interagency Committee on Autism.
(k) The Network
shall develop and maintain a website that offers public visibility to the
activities of the Network, the ICA, and tracks progress on attaining the goals
of the Blueprint for Collective Action, as well as offering links to key autism
services within Delaware.
(l) The Network
shall support the operations of the ICA through the maintenance of the website,
maintenance of reports created by the ICA and minutes of ICA meetings, as well
as other support as needed.
(m) The Network
shall consist of additional staff specifically designated to provide training,
technical assistance and coaching to all local education agencies across
Delaware.
(n) Training
and technical assistance related to education will be managed by the Network in collaboration with the office of
the Statewide Director of the Delaware Autism Program.
(o) The Network
shall also administer additional contracts for training and technical
assistance.
(p) The Network
shall have the authority to contract with outside individuals and agencies in order
to provide needed training and technical assistance consistent with the
Network’s goals.
(q) Contracts
shall be overseen by the Director of the Network.
(r) Contracted
individuals shall adhere to similar standards of professional qualifications and
demonstration of accepted, evidence-based practice as Network staff.
(s) The Network
Director shall be empowered to seek and administer outside grant funding as
appropriate to fulfill the mission of the Network.
SYNOPSIS
This
bill establishes an Interagency Committee on Autism and the Delaware Network
for Excellence in Autism. Among other things, the Interagency Committee
on Autism is charged with a) utilizing
evidence-based practices and programs to improve outcomes for people living
with Autism Spectrum Disorders (ASD) and related developmental disabilities
in Delaware by sharing information, initiatives, data and communications
among both public and private agencies providing services and supports for
individuals and families affected by Autism Spectrum Disorders in the State
of Delaware; and b) implementing the recommendations outlined in the 2013
Delaware Strategic Plan entitled “Blueprint for Collective Action: Final
Report of the Delaware Strategic Plan to Improve Services and Supports for
Individuals with Autism Spectrum Disorder.” The Delaware Network for Excellence in
Autism is to provide a resource for training and technical assistance for
Delaware state agencies, organizations and other private entities operating
in the State of Delaware that provide services and support to individuals and
families affected by Autism Spectrum Disorders. The Network is to
support the operations of the Interagency Committee on Autism through the
maintenance of the website, maintenance of reports created by the Interagency
Committee on Autism and maintenance of meeting minutes, as well as other
support as needed by the Interagency Committee on Autism. |
|
Author: Senator Henry